Love The Addict, Not The Addiction

This is the mantra of all SUD parents, everywhere, all the time, ad infinitum.

It sounds ludicrous. Similar to “love the thief, but not the theft.” In reality it’s closer to “love the depressed but not the depression” because addiction is a form of mental illness. No question it can devolve into criminal activity: stealing, dealing illegal drugs, buying said drugs, assault and battery, prostituting, driving uninsured/unlicensed or under the influence, destruction of private property, skipping out on jobs/taxes/bills. If this feels like an unhelpful psychic dump – well, so be it. This is the unvarnished truth of watching the disease unfold.

Sigh. Love the addict, not the addiction.
Still, this is how most of us parents feel. Regardless of the attenuating circumstances.

But it doesn’t come without effort. Especially when you witness their umpteenth battle. Sometimes you are in the crossfire. Sometimes you are the target. It’s not personal we tell ourselves. But it is. Not that we are personally hurt – we learn to move beyond that after a few dozen incidents. Instead we begin a sympathetic slow bleed. Their brain is scrambled and ours is bruised by default.

So what to do if you find yourself ringside again? Eventually we learn it is their fight, not ours. Taking on the role of a health care advocate is invaluable. Be accessible and have an emergency plan ready – a list of places that are insurance card acceptable, and a plan for what you will and won’t support. (And try not to feel guilty if your “won’t” list grows longer over time.)

Until that day comes, can you become a harbinger of peace? You may have to close your eyes to envision it. A friend from long ago told me that at bedtime she places one hand over her heart and one hand over her belly and tries to sync breath and heartbeat – and then she offers it up to her struggling son. A bit woo-woo, yes….but also effective from a “positive psychic dump” sort of place.

Speaking of positive psychic dumps I have been reading Sadhguru’s book, A Yogi’s Guide to Crafting Your Destiny. In it he warns of man’s propensity to rely on articulate memory for direction. Articulate memory being the conscious data we accumulate from everyday living. This “memory data” guides our present and future moments. (Most of us call it learned behavior.) Of course it has built in blinders because it is based on personal experience. This narrows our ability to see what truly is, and to navigate in novel ways. Sadhguru’s thesis mirrors scientific study of the brain: our neurological pathways are built by initial experiences and then reinforced and strengthened by future experiences (which are often predetermined because we are creatures of habit and, well, because we have already built that neural pathway!).

Ah the cyclical nature of disease, brain theory, madness! Who wants out? (Me, me, me!)

So how does one repair a brain sick from habitual emotional reactivity? Teach it to move in a positive direction. It’s not easy (bad, bad brain!) but it gets easier by practicing unfiltered awareness of everyone and everything in the present moment. (Sadhguru coaches setting an alarm on your phone every hour to waken yourself from that cyclical reverie.) Start small. Notice the faces of people around you, the smell of wet grass, the way your body can relax when you allow it too. Build some positive off-ramps to that diseased neurological super highway.

Now none of this is novel – many meditative, yogic and psycho-social practices have been preaching this for centuries. We also know it’s trendy as fu$%. Sometimes the sheer number of bumper stickers and t-shirts can make me want to give a few people the finger. Maybe you want to give me the finger. 🙂

And, yah, some of those future unfiltered moments are gonna be bad. We know they are. As my husband warns, ‘Why live them before they have happened? Why live them twice?’ And sometimes that bad experience will turn into something positive – it happens all the time. So many, many people heal from their addictions. It’s time for me to do the same.

We Begin Again Too.

When a family member relapses waking moments are not fully your own. Work seems less important. Socializing seems trivial. Food loses its flavor. Affection is harder to feel because sorrow has taken up residence in your breastbone and your heart can no longer radiate. You feel unjustifiably tired. Tears hang out right behind your eyeballs. It takes a lot of effort to keep them there.

This is the time when I lecture myself to “pony up” because the disease is worse for those with SUD than it is for me. At least that is how I have always looked at it. But lately I have begun to second guess myself. When someone is fully in their disease they aren’t experiencing crippling worry (unless it’s how to secure their next fix). And once they get high, they certainly aren’t thinking about you. The only person who can think about you is you.

Someone once reminded me, “as they begin again, so do we.”

But this “beginning” occurs on separate paths. Thinking about this makes me sad. As much as we may want to prop each other up, addiction for families is not a team sport. It may be called a “family disease” but there is little togetherness. Addiction is the opposite of together. Even in the closest of families it does it’s best to destroy connection. The problem with this is that as a parent you believe it is your duty to move everyone forward; like a sheepdog gathering it’s herd. For twelve long years that is what I tried to do. I now know that the only way toward peace and clarity is to strike out on my own.

Last week as I sat on my patio feeling the warm sun on my face, i began to ugly cry. Immediately I tried to shut that pity parade down. As I tried to suppress my feelings I considered how I would council a friend. I knew I would tell them that what they were going through was definitely sad and that crying is a natural response. So I stopped holding my breath and allowed myself to cry. And it felt honest. Which is a small victory because honesty is something addicts, and their loved ones, are terribly afraid of.

I considered what “beginning again” had meant to me in the past. It had meant getting my loved one back on track. Finding beds in detoxes, rehabs and sober homes, double-checking insurances, packing up apartments, handling transitions, medications, cigarette runs, money, clothing deliveries, speaking with counselors, attending family meetings, researching new therapies. For me it’s always meant this laundry list of things. These things are hard and getting through them requires an amnesiac version of auto pilot. But the truth is this time around the amnesia is leaving me. Clarity has finally rung its little bell and left a little dent in my shiny armor.

I know I should be completely satisfied that my loved one is beginning again. I am aware that my despondence over being at the starting point again is not helpful. I know that relapse is part of recovery. I know that I am not qualified to solve this problem. I know that they are doing their very best. I know that love doesn’t solve all things. And I know that where there is life there is hope.

I know all these things. I suspect I need a new path to walk. A road with a new signpost. Maybe it will say “let it be” or “hello me.”

Group Ghost Buster

Groups exist: running clubs and bird watching clubs, weight watcher groups and book groups. People join because of a common interest or to encourage each other in a common pursuit. But did you know that some people willingly join groups they do not want to belong to?! My husband and I belong to one. We joined a support group for those who have a family member suffering from the disease of addiction. We joined because “life had become unmanageable” and changing the behavior of our child was not possible. Instead we learned that we, like the others, are powerless. The common thread that binds us is pain.

Most Sundays a new face appears. We sit in a circle and each member gives an update on their addict; they are “doing well or back at rehab, homeless or paying rent.” We also share personally; we are “questioning our decisions, learning to not overreact, tired but hopeful.”

Why do we do this? There are therapists, on-line forums and self help books. There is also denial. Why meet to discuss the difficult?

I am not sure. But people tend to join when they are in crisis. The first step in the door is often a desperate one. They come for advice on what to do about a “missing family member high on alcohol and cocaine” or a loved ones positive tox screen for “benzos, fentanyl, crack and amphetamines.” We listen. We nod. There is a lot of nodding. There are no solutions. Instead we offer gentle suggestions or a new way of looking at the problem. It is strangely comforting to realize our ugly experience may be helpful to another – at a minimum by making them feel less alienated. A magical sort of alchemy happens when both hurt parties end up feeling a bit better.

When it is my turn I get to speak aloud the fears that have been echoing endlessly in my head all week. I liken this to opening up my closet door and calling out the ghost. Group Ghost Buster! My three-day headache dissolved after I shared one week. Why did the ibuprofen not work? I do not know.

You know what else helps? Getting lost in looking at my fellow group members.* I like looking at their shoes, their hands, their eyes, their hat choices. One wore pajamas two weeks ago! Some bring dogs. Some bring knitting. Others sit confidently. Some curl up a bit. I find it comforting to get lost in the visuals of our collectivity. Who knew this would be our reality? It’s akin to being dropped onto a strange new planet and having to assess your new mates. My husband’s verdict is that “he has never been in a room with more kindness and empathy.” I think he may be right. One member recently checked in with me via email. He signed off “you are loved.” (I cried then, and I am crying now.)

Ultimately, being in a group like this makes small talk impossible. Instead you must reach down to a deeper level to share the stuff that keeps us all afloat. I guess I should have nicknamed us Group Soul Buster. I encourage you to join one if you are in need.

*We now meet virtually. But I look forward to our in-person gatherings: for the shoes…and the hugs.

Public Service Announcement: Pressed Pills.

Pressed pills are counterfeit pills. And they are everywhere. If you are unfamiliar with them than you and I had something in common. We have all read about cash-only pill mills run by pain clinics. And individual crimes committed by those feeding an addiction: raided medicine cabinets, falsified prescriptions, doctor-shopping and faked injuries. But prescription pills no longer need to be hunted down because counterfeit ones can be delivered right to you. It’s an incredibly lucrative business. Consider that in the first seven months of 2020 the Minnesota DEA confiscated 46,000 counterfeit pills. That computes to 80K pills a year – in Minnesota – hardly a state known for its drug activity! If we were to use that same number and conservatively apply it to all 50 states, 4 million pills would have been confiscated. 4 million. Keep in mind that the police can’t find them all. Odds are there are upwards of 20 million illegal pills flooding our streets every year.

And most of us know nothing about it.

So what is a pressed, or counterfeit pill? They are pharmaceutical imposters made by drug dealers instead of lab technicians. They look exactly like the real thing in color, size, shape and feel. They even mimic the imprint code found on authentic medications. They look so real police are routinely fooled; unless you are transporting buckets of them in the backseat of your truck you are going to get by just fine – even if pulled over and asked to turn your pockets inside out.

But here’s the bigger problem: they are not what they purport to be. Pressed Adderall is comprised of methamphetamine, crack and speed; Xanax of ammonia, rat poison and fentanyl and Ecstasy of ketamine, bath salts and morphine. They may not be what you were originally shopping for, but they will get you high; and in doing so flood your bloodstream with highly addictive, highly deadly, substances.

How are they made? With a simple $500 investment on a pill press and pill mold. Equipment that is easily found on the internet. The profit on such an investment is six figures.* It’s no wonder it’s a burgeoning underground marketplace.

It’s seriously depressing. It is so monumentally hard to get ahead of the illegal drug trade. When one door closes (cutting back on the over prescribing of legal meds) another one opens.

I think back to a party I attended in 1984 at Vanderbilt University. I was a freshman experiencing my first frat party. It was wild. The music was blasting and the rooms pulsated with purple light. A few men wove their way through the crowd carrying large silver trays littered with pills. Pills of every color and size – free for the taking. I stuck to my beer. But plenty of others picked from the tray.

Here too one can get seriously depressed contemplating the ever widening scope of the problem. Yes, those pills pose a danger to those actively seeking them, but also to those who do not.

Richard Salter of Omaha’s DEA agency warns, “Please educate your high school and college-age kids on the extreme dangers of counterfeit medications, too often the overdose victims are young and are not prior drug abusers. They went to a party and someone offered them a pill to relax them – then they died. Too many American parents have had to bury their children as a result of drug overdose.” **

And so you have it: today’s public service announcement.

*March 2019 NABP, NADDI, and PSM
** DEA, Press Releases 8/12/20

*March 2019 NABP, NADDI, and PSM
** DEA, Press Releases 8/12/20

Stone Heart.

“Too Long a Sacrifice Makes a Stone of the Heart”  – William Butler Yeats

This week I had cause to worry about my child’s commitment to her sobriety. I had been led to believe that she had traveled by train to our hometown to spend time with a friend who is an active alcoholic and was, or still is, a crack cocaine abuser. This friend has a boyfriend who regularly beats her. She is a petite blonde with glassy eyes and bird like bones – but he throws her against walls and routinely blackens her blue eyes. My child was to spend the entire evening with them in a Boston hotel. She did not share this news.

Why would she choose to do these things? What good could come of this?

I felt fear – and anger.  I had a hard time sleeping that night. I took a melatonin, but it didn’t offer much relief. I also turned the phone off. I didn’t want to be woken by what I assumed would be a midnight phone call from an overcrowded emergency room. Or the police demanding I pick her up at 2 am. I imagined changing out of my warm pajamas, programming my gps, and driving into yet another cold, fraught ridden night. And then to be greeted by a kicking, screaming addict, a disgusted police officer, and the mind numbing question: how do you want to handle this?

I am still so tired and it’s been over a year.

I never got that imagined phone call. A few days later I drove up to Maine to see her myself – and she appeared healthy, happy and whole. Which made me ask myself, “why would I turn off the phone when I had a sneaking suspicion that she would get into trouble?” Why would I put limitations on coming to her aid when she had worked so hard for so long? People make mistakes. People relapse. Is it because I didn’t want to look at that fact? Or because I didn’t want to be inconvenienced?

In retrospect I should have made sure my phone was fully charged. I should have had a type written list of detoxes to call when the sun rose. And if her relapse had been fatal (as it often is after having significant clean time) I should have rushed to the emergency room to hold her.

I have a beautiful child. Despite it all she is caring, funny, hard working… and mine. Why had I allowed the past to make a stone of my heart?

I See You Mr. Double Standard.

I know many people believe that healthcare dollars should not be spent on those who choose to use street drugs. I get it. It’s about personal responsibility. Healthcare dollars are stretched enough caring for those who aren’t the agents of their own destruction.

However, I ask you to consider the following:

We cure cancer in those who continue to smoke cigarettes.
We staple the stomachs of those who ignore the food pyramid.
We perform heart surgery on those who have never seen the inside of a gym.
We given insulin to those who knowingly eat donuts.
We fix the broken limbs of those who practice extreme sports.
We pay for the delivery  of babies conceived by high risk mothers.
We stitch back the bodies of those who crash speeding cars.
We treat melanoma in those who refuse to stop sun worshipping.
We treat venereal diseases in sexually promiscuous people.

The costs incurred for treating these examples of “irresponsible behavior” are staggering: According to the Centers for Disease Control and Prevention, smoking is the number one preventable cause of disease in the United States and it costs $170 billion dollars a year in direct medical costs. According to the American Diabetes Association one in three medicare dollars are spent on treating diabetes at a cost of $322 billion dollars a year. And, “American use of tanning beds may lead to upwards of 400,000 cases of skin cancer annually.” (American Academy of Dermatology).

But you know what?  Those individuals receive treatment with care, efficiency, and efficacy. The same can not be said for those with substance use disorder. This time a year ago my nineteen-year old was turned away from a detox center because there were no beds. She then walked to Boston City Hospital’s emergency room, sweating and trembling, for help. They too turned her away. Desperate, she spent that evening trolling Mass Ave looking for the drug she needed to tide her over for one more day. The next morning she returned to both the detox center and the emergency room. And once again she was refused admittance. She called crying; “could I please, please help?”

Help should have been as simple as a request.

I spoke with the ER doctor. He explained, “we don’t treat drug addicts here.” He then explained that he would also not admit her for mental health reasons because he didn’t believe she “would kill herself.”

I felt weak at the knees. How does one mount a spirited defense when powerless?

“My daughter is only nineteen years of age. She is not yet a hardened street addict. She is high on a drug that is killing people at an unprecedented rate. She is asking for help. You are that help.”

Silence.

“We are not asking for charity. She is insured by two separate policies.”

His reply: “Hospital rules do not permit admittance.”

“Surely,” I argued, “it is time for hospital rules to change. This is an epidemic. Turn her away and there is a strong possibility that she will die tonight.”

Silence.

“Why wait for the hospital to change it’s policies in response to a dead child and a lawsuit?”

Silence

“You took the Hippocratic Oath.”

Silence.

“You could lie about the reason for her admission…”

Do you know how it feels to beg when you shouldn’t have too? Begging when the stakes are so ridiculously high?  It feels like swimming against the tide while trying to reach your drowning child. Swimming and swimming…and then the dorsal fin appears.  But hope is not lost: a lobster boat comes into view!  You yell for a rope. But they don’t throw one.   No, they don’t.  Instead, they sit back and watch.  Because, you know, she shouldn’t have been swimming in those waters.

I know I sound angry. That’s because I am.  I spend $1500 a month out of pocket for health insurance – and I have had to beg for life saving services.  Addiction is classified as an illness by the Diagnostic and Statistical Manual of Mental Disorders (DSM-III).   But the double standard most assuredly remains.

Triggers Are Not Real.

“TRIGGERS ARE NOT REAL.”

My daughter stated this, firmly, when I tried to stop her from taking a bus through a neighborhood full of triggers. Addicts are supposed to avoid triggers….just like someone on a diet should avoid a bakery, and someone thinking about a new dog should avoid a pet shop. It’s good common sense.

This particular neighborhood, for three years straight, had replaced days meant to be spent at school. It was where she met her first, of many, older, opiate-addicted boyfriends. The neighborhood where she drank with her girlfriends until they couldn’t stand up. The neighborhood she went missing in for nights on end. The neighborhood she partied in to the point of hospital intervention, repeatedly. The neighborhood with the drug store street corner. All of this would be within memorable reach.

“I don’t want you to take the bus. I can get you in the car.  I would be happy to come get you… “

“No.”

Trigger has to be the perfect colloquialism for “classical conditioning.” I appreciate the way it brings to mind the image of a loaded gun to the head. When you are the parent of an addict it becomes that clear. That person, that bent spoon, that ball of singed tinfoil, that street corner…. all become sensorial reminders capable of triggering relapse. And relapse is nothing short of a game of Russian roulette.

To be clear, my fear of triggers isn’t a case of playing probabilities or trusting in a predictable pattern of personal weakness. Classical conditioning is scientifically proven. Most of us are familiar with Pavlov and his bell salivating dogs. This early study in classical conditioning proved that a learned process can change a previously neutral stimulus into a potent stimulus. This potent stimulus in turn creates real biological change in the body. Biological change where none existed before. Replace Pavlov’s bell with a street corner and excessive saliva with irrepressible craving and the problem becomes all too real.

“I want to take the bus. Triggers are not real. Like, everything is a trigger. A song. A boy. The bathroom. The sunshine. A nice day. A bad day. Even the breeze. You have to deal with your stuff, mom. If taking a bus makes me relapse then I haven’t dealt with my stuff. You just don’t understand.”

I am trying to. Classical conditioning is not equivalent to the loss of free will. Biological stimulus does not have to be a siren call to action. We are a little more complicated than a bell drooling hound. But how difficult must it be to retrain our rewired and tired brains to see each situation clearly and non-reactively? Can we be our own psychologists, neurosurgeons, life style coaches and cautiously present Buddhas?

In the end, she took that bus. And you know what?
She made it safely home.

Modern Love

There is a program on National Public Radio that does a spectacularly good job at deconstructing a word most of us feel we can confidently define: love.

In one episode Jason Alexander narrates his love for the family goldfish. The loss of someone close to him has forged his affection for this swimmingly simple little golden fish. Its presence represents an escape, and an embracing, of the crumbling reality of existence.

Can love be tempered by unpleasant realities? The program would say yes. Most of us, especially those of us with decades of life behind us, would agree.

We all have our own “modern love” story. Mine would be about my daughter, who many might describe as hard to love.  They would be wrong.

Admittedly, she was hard to snuggle.  She preferred the plastic embrace of her car seat. The car seat could be parked far from me: she was happy with any room, any corner. She tracked me with her eyes, but she tracked other things with equal interest. I took to forcibly putting her in a snuggly and walking up and down the street with her.

Glowering was also a specialty. She was a beautiful blonde baby with fat pink cheeks, green eyes, and a perma-scowl. Her mouth, right from the get-go, had a natural down turn to it. Glowering with the addition of defiantly crossed arms came later. When asked to give her name during her kindergarten interview she stood up, turned her chair backward to the teacher, crossed her arms, and sat down. She remained that way for the entire interview.

My husband and I remained enamored. (Why should she perform tricks like a trained seal? Maybe we have the next Hillary!) We affectionately nicknamed her “little black cloud.” We would mimic her mood in a dreary Eeyore voice – desperately trying to add some EB White levity to our situation. Sometimes we would just mime a “brewing storm”  by circling our fluttering hand over our weary heads.

But of course at this young age it isn’t about them loving you. It’s about you loving them.

Loving her could be exhausting. It wasn’t easy for my daughter to accept love. She appeared to weigh it, to quantify it – to find it lacking. She was often displeased. I came to see it as her natural default button. She screamed about sitting in the cart at the grocery store. She screamed at her older sister to claim the best barbie. She screamed if she could hear you chewing during dinner. She screamed for the last cookie, to hold mommy’s hand, to find the most Easter eggs. She screamed over minor transitions. It was relentless. Her ability to express love was buried under an itchy blanket of sensory issues, fear, jealousy, and an unshakeable sadness.

But she loved us too. It was apparent in the way she would fit herself to your side when watching a Disney movie. And in the occasional half smile with tilted head. In the way she kissed her dog’s bearded face. And the gifts of found flowers or crayoned pictures.

So, yeah, love is not only tempered by unpleasant realities… in can grow in them. It may even grow hardier. We are living proof.  We are the dandelions of love.

Partying with the Sober Folk.

This time a year ago I was my daughter’s guest at a recovery barbecue. We made our way there via a South Boston park with harbor views. People were playing what appeared to be a game of “pick up” baseball. A handful of lucky fans sat under the few trees that sported shade. I kept walking through invisible puffs of cigarette smoke. Children were screaming with their mouths entirely full of half eaten hotdogs. It was, you know, quintessential American stuff.

We found the recovery center across the street – in the scrubby back yard of a former church property. Outside an old man with a gold tooth was watering an incredible, and I mean incredible, garden. He smiled at us.

Inside the yard we were handed raffle tickets. Strangers cooked us hamburgers. We drank extremely cold sodas from an overly iced trash can. People made room for us at crowded picnic tables. We ate watermelon and chips from wicker baskets. We listened to top 40 music from speakers slung here and there.

I watched a young man perform a break dance that was skillful and unabashed. He spun with pure joy on a small patch of concrete. His eyes were half closed. My self conscious self had nothing in common with him. At the time I thought it was the dance that enthralled me.

Later this same boy shared his story. His drug use had left him homeless. He had slept under a bridge for a year: through a Boston winter. His life had been saved by another person at the party.  His life had been saved by some guy at the party.

How many of us ever save anything? Maybe we salvage a burning dinner, or retrieve a lost accounts payable receipt. Better yet, we preserve a colleague’s job. Or rescue a stray dog. Those are all great for sure… but not quite the same.

Clearly this was not your typical barbecue.

When the young man won the raffle prize (a long sleeved jersey) he handed it to my daughter. He knew she liked it. Possibly he was trying to impress her, but of that I am not certain. I do know that he most likely owned very little…and he gave it away just to see her smile.

Inside the building we found my daughter’s counselor playing the cello. She had it steadied between her legs, and her tattooed wrist held a delicate, long bow. A young man with the teeth of a meth addict accompanied her on the guitar. The sound of her cello and the sound of his voice broke my heart into a million, billion pieces.

I have been turning this day over in my head for a very long time.

“PTSD” – Post Traumatic Stress Disorder

This is when I am supposed to reference Webster’s dictionary. I can picture the bulleted item list that has been carefully compiled by doctors and psychiatrists, and craftily winnowed down by editors.

Yet words are bound to fail. PTSD creates a feeling that can not be contained by bullets or paragraphs. If forced to use words they would be: “sense of dread.”

A sense of dread accompanied by unwelcome imagery. Imagery that is not imaginary. Dread that is not unjustified.

The ring of the phone makes me ill. Physically ill.
A knock on the door? Visions of a police officer.
An envelope without a return address?  Bad news.
My daughter not texting for a few days? Relapse.
Sad song on the radio? Message of doom.
Bitter snow? Frostbitten child.
Cheap motels off the highway? Sadness, loneliness, death.

My list could be longer. But it hurts to write it. If I suffer from PTSD, how badly must my daughter suffer? I have seen the results of her use, but have not lived through the experience of it.

“Conquer your fears” is written everywhere nowadays – from business journals to self help magazines. But the kind of fear they often refer to is that of financial risk. (Or a lifestyle change: try that new vegan diet! get a new partner! make a career switch!) I am talking about a different kind of fear. A primal fear. The fear of losing your stormy green eyed child to something so unpredictable, so misunderstood, so maddeningly unacceptable. I have written my daughter’s obituary in my head. I have actually looked in my closet to see if I have an acceptable black dress. These were my attempts to conquer my fear. My attempts to claim and manage the unacceptable.

Nelson Mandela says that “courage is not the absence of fear, but the triumph over it.” That the “brave man is not he who does not feel afraid, but he who conquers that fear.”

I am not there yet. But my daughter is. She is putting one step in front of the other…. steady and straight. Even with those swirling thoughts that must exist in her head. If I had to provide a picture of bravery for Webster’s dictionary it would be of my stubborn green eyed child making her way across a tight rope.

And I am waiting on the other side.